Quality of Life Booster for OSA patients

Quality of Life Booster for OSA patients

 

 

 

 

 

Obstructive sleep apnea (OSA) is a sleep disorder that can lead to major neurocognitive and

cardiovascular sequelae like sudden death, stroke or heart arrhythmia. The prevalence is estimated to

be ~20% of whom ~80% are not diagnosed. The annual cost of OSA for NHS is high and increasing

every year.

 

The Continuous Positive Airway Pressure (CPAP) is the standard treatment for OSA. It is demonstrated

that there is a linear relationship between CPAP usage and improvement of the patient’s clinical

condition. However, 30 to 60% of OSA patients are not adherent to CPAP treatment when evaluated one

year after the therapy starts. To increase patients adherence, it is essential to focus on the outcomes

that matter to patients while involving and engaging them more in their therapy. To achieve this

objective it is fundamental to implement personalized and adaptive care to meet patient’s needs and

condition evolution.

 

The Quality of Life Booster (QoLB) initiative for OSA patients in The Netherlands has been implemented

to bring value 1) by improving the “outcomes that matters to OSA patients“, 2) by providing support to

patients at the right moment with the right care to increase the adherence to the CPAP treatment, 3) by

educating and coaching patients to the CPAP treatment.

 

The QoLB initiative, relying on the method of the PIMA scientific study, is carried out by a dedicated

team of specialized OSA nurses. It starts with patient segmentation based on 8 socio-demographic and

clinical variables (age, autonomy, motivation, disease severity etc..) and dedicated questionnaires.

Based on the result of the questionnaires, the patient is profiled and is assigned with a dedicated care

plan, consisting of a sequence of touchpoints whose frequency is proportional to the profile of risk of

the patient. Content and channel of each touchpoint are also dependent on the patient profile and

condition. Throughout the therapy follow up, the patient profile is constantly re-assessed and, if needed,

a more adapted care plan could be assigned to the patient. The patient is also accompanied by the

nurses with educational and coaching programs around the CPAP treatment and the outcomes are

monitored and reported.

 

The QoLB is a patient centric initiative which has been developed around the results of a survey sent to

35.000 patients, 9.500 replies (27%) about the outcomes that matter to OSA patients. Moreover, it

involves and empowers the patient throughout the therapy: the patient becomes actor of his treatment

thanks to an increased knowledge and awareness around the therapy and by reporting about the

evolution of his treatment at each follow up of the care plans.

 

The QoLB initiative has been implemented for 140 patients from 4 hospitals in The Netherlands. It has

been led for a 6 months period in 2021 by an IPU consisting of 8 specialized nurses, one psychologist,

one data scientist and 4 OSA therapy experts. It has been observed that QoLB initiative increases

patients’ outcomes and QoL, improves patients adherence and decreases the time for adherence to the

CPAP treatment.